Howard contributes to new National Academies report on improving treatment and quality of life for people with ALS

At any one time, at least 30,000 people in the U.S. are living with amyotrophic lateral sclerosis (ALS), a rapidly progressive, fatal neurological disease affecting individuals, caregivers, at-risk genetic carriers, and others. In 2022, Congress directed the National Institutes of Health to commission a National Academies committee of experts to recommend key actions public, private, and nonprofit sectors should take to make ALS a livable disease within the next 10 years. Professor Ileana Howard, MD, is one of the contributing experts. 

The resulting report, Living with ALS, focuses on short-term and long-term actions including recommending an integrated ALS multidisciplinary care and research system to help facilitate earlier diagnosis and connections to specialty care.