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Patient Resources
The following web sites offer additional resources and information that may be useful to our patients, and their friends and families:
Augmentative Communication
Barkley Center for Augmentative Communication web site has information for both clinicians and consumers with lots of information about the range of devices available for individuals.
Brain Injury
The University of Washington's Traumatic Brain Injury Model System (TBIMS), headquartered at the University of Washington's Department of Rehabilitation Medicine and Harborview Medical Center, is funded by the National Institute on Disability and Rehabilitation Research (NIDRR).
Burns
The Burn Resource Center provides medical information, support groups, and resources for burn survivors and their loved ones.
Disability Issues
ABLEDATA – Assistive technology and disability related resources
Canine Companions for Independence – A national nonprofit organization that provides highly-trained assistance dogs, and ongoing support to ensure quality partnerships.
Disability Information and Resources – A resource list compiled and maintained by Jim Lubin, a C2 quadriplegic.
Discover Technology – information for persons with disabilities and service providers
DO-IT Program – Disabilities, Opportunities, Internetworking, and Technology at the University of Washington
Easter Seals Society – provides exceptional services for people living with autism and other disabilities
Liberty Resources – An Independent Living Center in Philadelphia, PA
National Center for the Dissemination of Disability Research (NCDDR) – An online Directory of medical journals and guidelines for authors
Through the Looking Glass (TLG) Services – Training, materials and research concerning families in which a child, parent or grandparent has a disability or medical issues.
Disabled Sports
National Wheelchair Basketball Association (USA)
United States Quad Rugby Association
Discrimination
The Office for Civil Rights is the law enforcement agency whose primary responsibility is to ensure that recipients of federal financial assistance do not discriminate against students, faculty or other individuals on the basis of race, color, national origin, sex, disability or age.
Electrodiagnostic Medicine(EMG)
Patient information on Electrodiagnostic Medicine (EMG) – what it is and why it is done.
General Health Information
The Medicine Plus website is extremely comprehensive and easy to navigate with links to hundreds of authoritative sites. Many experts say this is the place to start your medical search on any condition.
The Mayo Clinic has a web site with information on health topics that is easy to understand and user-friendly, with lots of advice on recognizing and dealing with health problems.
Listservs
The Personal Care Assistance Mailing List is an email discussion list for people who use personal care assistants (PCAs). To join the list, send an e-mail message to listserv @ maelstrom.stjohns.edu with only the words "Subscribe PCA" followed by your first and last names in the body of the message (do not include punctuation in the message).
Vent Users Mailing List is an internet mailing list forum where ventilator users can communicate with one another. To join, fill out the online form at the website.
Medcon
The University of Washington offers a 24-hour, toll-free consultation and referral service for health care professionals and their clients with spinal cord injury. To contact MEDCON, dial 206-543-5300 if you live in the Seattle area, or 800-326-5300 if you are calling long distance. An operator will direct your call to the physician or other health care professional best able to answer your question.
Multiple Sclerosis (MS)
The National Multiple Sclerosis Society website has information and links to medical facts, publications, research and local resources.
The Multiple Sclerosis Research and Training Center has information about current research and patient information.
Muscular Dystrophy and Other Neuromuscular Diseases
The Muscular Dystrophy Association site has extensive information on neuromuscular disorders, research information and many links to outside publications.
Neurological Disorders
The National Institute of Neurological Disorders and Stroke website has brief articles about various neurological disorders that are linked to the specific national associations. This website includes information on strokes, multiple sclerosis (MS), Parkinson's disease, Huntington's disease, etc.
Pain
The American Chronic Pain Association website is a good source of information for patients with chronic pain.
Paralyzed Veterans of America
The Paralyzed Veterans of America website is for Veterans who have experienced spinal cord dysfunction (SCI). It has a good section on living with SCI which can be accessed by the public.
Physiatrists (Rehabilitation Physicians)
The American Academy of Physical Medicine and Rehabilitation website has information on locating a Physical Medicine & Rehabilitation physician, the conditions that our physicians treat, opportunities for medical students, background about the specialty, etc.
Spinal Cord Injury (SCI)
The Northwest Regional Spinal Cord Injury System (NWRSCIS), centered within the Department of Rehabilitation Medicine at University of Washington Medical Center, Harborview Medical Center and Children’s Hospital and Regional Medical Center, is funded by the National Institute on Disability and Rehabilitation Research (NIDRR).
Featured Patient Care Article
SCI & Urinary Tract Infections: Intermittent Catheterization
It is important to recognize the signs of a urinary tract infection. Because many patients with spinal cord injury must empty their bladders by intermittent catheterization, they are more likely than most people to get bacteria in their urine.
