MS Community engagement meeting: What can be done collectively to promote out-of-home participation
This community engagement meeting is part of a research study led by PhD candidate Bishan “Melody” Yang from the Department of Rehabilitation Medicine at the University of Washington. In the earlier phases of this research study, the research team explored the external barriers and how they interfere with participation in meaningful and important activities outside the home among people with multiple sclerosis (MS). In this meeting, the researchers will share the study findings and invite input from the larger MS community on what needs to be changed in our society regarding physical, societal, and attitudinal environments to better support people with MS.
What to expect in this meeting?
- Learn about what we have found from our research study
- Engage in group discussions with the following objectives:
- Identify the top priorities for changes to increase external support for people with MS to engage in out-of-home activities satisfyingly
- Explore the reasons behind these priorities
- Brainstorm strategies for implementing these changes effectively
- Please note: Discussions will be recorded via Zoom for research purposes
Who should attend?
All MS community members are welcome to register. We are seeking diverse representation; therefore, we hope to recruit:
- Individuals with MS
- Family members/Caregivers
- MS healthcare providers/MS care leadership
- MS community organization employees/leaders
- MS or disability activists/advocates
- MS researchers
- Policymakers/legislators
- Individuals with no particular connection with MS but are interested in this topic
When and how to join?
- Date: May 9, Wednesday
- Time: 12 - 2 pm PDT (2 - 4 pm CDT or 3 - 5 pm EDT).
- Location: Zoom
- Please complete the registration form: https://rb.gy/f4x78w
- Registration is required. Seats are limited.
- Registration will be closed on 5/7 or once we reach our maximum capacity, whichever comes first.
- Please note that you will only receive the Zoom link once your registration is approved.
Please feel free to contact Melody at byang17@uw.edu if you have any questions regarding this study.